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    Factors associated with the quality of life of family carers of people with dementia: A systematic review

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    Authors
    Farina, Nicolas
    Page, Thomas E.
    Daley, Stephanie
    Brown, Anna
    Bowling, Ann
    Basset, Thurstine
    Livingston, Gill
    Knapp, Martin
    Murray, Joanna
    Banerjee, Sube
    Affiliation
    Brighton and Sussex Medical School
    University of Kent
    University of Southampton
    Lived Experience Advisory Panel, Sussex Partnership NHS Foundation Trust, Hove
    University College London
    London School of Economics
    Centre for Dementia Studies, Brighton and Sussex Medical School, Brighton
    Issue Date
    2017-02-03
    
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    Abstract
    Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. Searches on terms including “carers,” “dementia,” “family,” and “quality of life” in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer–patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well‐being; support received; carer independence; carer self‐efficacy; and future. The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.
    Citation
    Farina, N., Page, T.E., Daley, S., Brown, A., Bowling, A., Basset, T., Livingston, G., Knapp, M., Murray, J. and Banerjee, S., (2017). 'Factors associated with the quality of life of family carers of people with dementia: A systematic review'. Alzheimer's & Dementia, 13(5), pp. 572-581.
    Publisher
    Wiley
    Journal
    Alzheimer's and Dementia: The Journal of the Alzheimer's Association
    URI
    http://hdl.handle.net/10545/624752
    DOI
    10.1016/j.jalz.2016.12.010
    Additional Links
    https://alz-journals.onlinelibrary.wiley.com/doi/full/10.1016/j.jalz.2016.12.010
    https://kar.kent.ac.uk/id/eprint/59770
    Type
    Article
    Language
    en
    ISSN
    1552-5260
    ae974a485f413a2113503eed53cd6c53
    10.1016/j.jalz.2016.12.010
    Scopus Count
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    Department of Social Sciences

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