Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework
Authors
Daley, StephanieMurray, Joanna
Farina, Nicolas
Page, Thomas E.
Brown, Anna
Basset, Thurstine
Livingston, Gill
Bowling, Ann
Knapp, Martin
Banerjee, Sube
Affiliation
Brighton and Sussex Medical SchoolKings College London
Sussex Partnership NHS Foundation Trust
University of Kent
University College London
University of Southampton
London School of Economics
Issue Date
2018-09-25
Metadata
Show full item recordAbstract
Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia. We studied family carers of people with dementia and staff working in dementia services iteratively using in‐depth individual qualitative interviews and focus groups discussions. Analysis used constant comparison techniques underpinned by a collaborative approach with a study‐specific advisory group of family carers. We completed 41 individual interviews with 32 family carers and nine staff and two focus groups with six family carers and five staff. From the analysis, we identified 12 themes that influenced carer QOL. These were organised into three categories focussing on person with dementia, carer, and external environment. For carers of people with dementia, the QOL construct was found to include condition‐specific domains which are not routinely considered in generic assessment of QOL. This has implications for researchers, policy makers, and service providers in addressing and measuring QOL in family carers of people with dementia.Citation
Daley, S., Murray, J., Farina, N., Page, T.E., Brown, A., Basset, T., Livingston, G., Bowling, A., Knapp, M. and Banerjee, S., (2019). 'Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework'. International journal of geriatric psychiatry, 34(1), pp. 79-86.Publisher
WileyJournal
International Journal of Geriatric PsychiatryDOI
10.1002/gps.4990Additional Links
https://onlinelibrary.wiley.com/doi/full/10.1002/gps.4990https://kar.kent.ac.uk/id/eprint/68829
Type
ArticleLanguage
enISSN
0885-6230EISSN
1099-1166ae974a485f413a2113503eed53cd6c53
10.1002/gps.4990
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Except where otherwise noted, this item's license is described as http://creativecommons.org/licenses/by-nc/4.0/