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    An exploration of family in the context of head injury: a narrative understanding of change

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    Authors
    Secretary, SRR
    whiffin, charlotte
    Bailey, Christopher
    Ellis-Hill, Caroline
    Nikki, Jarrett
    Peter, Hutchinson J.
    Affiliation
    University of Derby
    University of Nottingham
    Bournemouth University
    University of Portsmouth
    University of Cambridge
    Issue Date
    2020-02-13
    
    Metadata
    Show full item record
    Abstract
    Traumatic brain injury is potentially devastating. Families commonly respond by supporting the injured individual and their recovery. However, family members are at risk of negative psychological outcomes and family functioning has emerged as a key variable post injury. What is less understood are the subjective changes experienced by families and the impact these have post injury. A longitudinal narrative case study using in-depth narrative qualitative interviews. Data were collected a one, three and 12 months post injury. Nine non-injured family members from three families were recruited from an acute neurosurgical ward. Five interwoven narrative threads were identified: trauma, recovery, autobiographical, suffering and family. The narrative approach emphasized that the first-year post-head injury was a turbulent time for families, who were active agents in the process of change. Families’ stories of illness from a nonpatient perspective need recognition and validation in their own right. understanding this experience in terms of biographical narratives helps to recognize the vacillation between change and continuity. Adopting a narrative approach to rehabilitation may be more positive than adopting a model of loss. Change is not limited to the injured person and family members need help to understand that they too are changing as a result of their experiences. In addition, it is proposed that there be a shift in the discourse in research and practice literature away from loss and towards transition, with greater recognition of the role that uninjured family members play in making sense of change post injury.
    Citation
    Whiffin, C., Bailey, C., Ellis-Hill, C., Jarrett, N. & Hutchinson, P. (2020). 'An exploration of family in the context of head injury: a narrative understanding of change'. Clinical Rehabilitation.
    Publisher
    SAGE Publications
    Journal
    Clinical Rehabilitation
    URI
    http://hdl.handle.net/10545/624626
    DOI
    10.1177/0269215520902499
    Additional Links
    https://journals.sagepub.com/toc/CRE/current
    https://journals.sagepub.com/doi/full/10.1177/0269215520902499
    Type
    Article
    Language
    en
    ISSN
    0269-2155
    EISSN
    1477-0873
    ae974a485f413a2113503eed53cd6c53
    10.1177/0269215520902499
    Scopus Count
    Collections
    School of Nursing and Professional Practice

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