Show simple item record

dc.contributor.authorAubeeluck, Aimee
dc.contributor.authorStupple, Edward
dc.contributor.authorBartoszek, A
dc.contributor.authorKocka, K
dc.contributor.authorŚlusarska, B
dc.contributor.authorStupple, Edward J. N.
dc.date.accessioned2019-07-05T15:54:03Z
dc.date.available2019-07-05T15:54:03Z
dc.date.issued2019-06-30
dc.identifier.citationBartoszek, A., Aubeeluck, A., Stupple, E., Bartoszek, A., Kocka, K., & Ślusarska, B. (2019). 'Exploring the reliability and validity of the Huntington’s Disease quality of life battery for carers (HDQoL-C) within a Polish population'. International Journal of Environmental Research and Public Health, 16(13), pp. 1-10. DOI: 10.3390/ijerph16132323en_US
dc.identifier.issn16617827
dc.identifier.doi10.3390/ijerph16132323
dc.identifier.urihttp://hdl.handle.net/10545/623983
dc.description.abstractHuntington’s disease (HD) is a rare genetic neurodegenerative disorder that causes motor disorders, neuropsychiatric symptoms and a progressing deterioration of cognitive functions. Complex issues resulting from the hereditary nature of HD, the complexity of symptoms and the concealed onset of the disease have a great impact on the quality of life of family carers. The caregivers are called the “forgotten people” in HD, especially with relation to genetic counseling. This study aims to explore the reliability and validity of the Huntington’s Disease Quality of Life Battery for carers (HDQoL-C) within a Polish population. A total of 90 carers recruited from the Enroll-HD study in Polish research centers of the European Huntington’s Disease Network completed a polish translation of the HDQoL-C. Data were subjected to Principle Components Analysis (PCA) and reliability measures. The Polish version of the shortened versions of the HDQoL-C is similarly valid compared to the original English version and suitable for use within this population. The HDQoL-C has previously demonstrated a wide range of benefits for practitioners in capturing and understanding carer experience and these benefits can now be extended to Polish speaking populations.en_US
dc.description.sponsorshipN/Aen_US
dc.language.isoenen_US
dc.publisherMDPIen_US
dc.relation.urlhttps://www.mdpi.com/1660-4601/16/13/2323en_US
dc.subjectHuntington’s disease; quality of life; family caregiving; reliability and validity; factor analysis; Polanden_US
dc.titleExploring the reliability and validity of the Huntington’s Disease quality of life battery for carers (HDQoL-C) within a Polish populationen_US
dc.typeArticleen_US
dc.identifier.eissn16604601
dc.contributor.departmentUniversity of Derbyen_US
dc.identifier.journalInternational Journal of Environmental Research and Public Healthen_US
dcterms.dateAccepted2019-06-28
dc.author.detail776825en_US


This item appears in the following Collection(s)

Show simple item record