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dc.contributor.authorBij, Deepali
dc.contributor.authorKapadi, Romaana
dc.contributor.authorSchofield, Malcolm B.
dc.contributor.authorOsias, Arlene
dc.contributor.authorKhalid, Nosheen
dc.contributor.authorKaya, Banu
dc.contributor.authorTelfer, Paul
dc.contributor.authorElander, James
dc.date.accessioned2019-07-02T10:20:06Z
dc.date.available2019-07-02T10:20:06Z
dc.date.issued2019-06-23
dc.identifier.citationElander, J., Bij, D., Kapadi, R., Schofield, M.B., Osias, A., Khalid, N., Kaya, B. & Telfer, P. (2019). 'Development and validation of the satisfaction with treatment for pain questionnaire (STPQ) among people with sickle cell disease'. British Journal of Haematology, pp. 1-31. DOI: 10.1111/bjh.16015.en_US
dc.identifier.issn00071048
dc.identifier.doi10.1111/bjh.16015
dc.identifier.urihttp://hdl.handle.net/10545/623953
dc.description.abstractA brief measure of patient satisfaction with treatment for pain is needed to help improve the treatment of painful episodes caused by sickle cell disease (SCD), especially during and after the transition from paediatric to adult care. Focus groups of 28 adolescent and adult patients were consulted about the content, clarity and relevance of 30 potential items, resulting in an 18-item version. This was validated by analysing questionnaire responses from 120 patients aged 12-53 years. Confirmatory factor analysis and item analysis indicated five subscales with high internal reliability: ‘Communication and Involvement’ (6 items, α=0.87); ‘Respect and Dignity’ (3 items, α=0.82); ‘Pain Control’ (3 items, α=0.91); ‘Staff Attitudes and Behaviour’ (4 items, α=0.88); and ‘Overall Satisfaction’ (2 items, α=0.85); plus a Total Satisfaction score (18 items, α=0.96). High negative correlations with the Picker Patient Experience Questionnaire, a measure of problem experiences, indicated good convergent validity. Lower satisfaction scores among patients aged over 18 years, those admitted via the emergency department, those treated by non-specialist hospital staff, and those reporting more breakthrough pain indicated good concurrent validity. The questionnaire provides a convenient brief measure that can be used to inform and evaluate improvements in healthcare for adolescent and adult patients with SCD, and could potentially be adapted for other painful conditions.en_US
dc.description.sponsorshipBart’s Charity Strategic Research Grant (Reference Number 1704); non-restricted financial grants from Kyowa Kirin and Mundipharma; University of Derby Undergraduate Research Scholarship awards; University of Derby REF reinvestment programme.en_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.urlhttps://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16015en_US
dc.rightsAttribution-NonCommercial-NoDerivs 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/us/*
dc.subjectSickleen_US
dc.subjectPainen_US
dc.subjectTreatmenten_US
dc.subjectPatienten_US
dc.subjectSatisfactionen_US
dc.titleDevelopment and validation of the satisfaction with treatment for pain questionnaire (STPQ) among patients with sickle cell diseaseen_US
dc.typeArticleen_US
dc.identifier.eissn13652141
dc.contributor.departmentUniversity of Derbyen_US
dc.identifier.journalBritish Journal of Haematologyen_US
dcterms.dateAccepted2019-04-23
dc.author.detail779740en_US


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