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    Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research.

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    Authors
    Topcu, Gogem
    Buchanan, Heather
    Aubeeluck, Aimee
    Garip, Gulcan cc
    Affiliation
    University of Nottingham
    Eastern Mediterranean University
    Issue Date
    2016-02-09
    
    Metadata
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    Abstract
    OBJECTIVE: The lack of adequate conceptualisation and operationalisation of quality of life (QoL) limits the ability to have a consistent body of evidence to improve QoL research and practice in informal caregiving for people with multiple sclerosis (MS). Thus, we conducted a meta-synthesis of qualitative research to improve the conceptual understanding of the experiences of MS carers and to identify factors that affect carers' QoL. DESIGN: Systematic searches of five electronic databases yielded 17 qualitative studies which were synthesised using the principles of meta-ethnography. RESULTS: The synthesis resulted in nine inter-linking themes: Changes and losses; challenges revolving around MS; caregiving demands; burden of care; future concerns; external stressors; experiences of support; strategies used in managing the caregiving role; and motivating factors. Our findings suggest that MS carers can have both positive and negative experiences which may bring challenges and rewards to the carers. CONCLUSION: We present a proposed QoL model for MS caregiving which can be used to inform the development of interventions for MS carers to improve their QoL. However, further empirical research is needed to examine the utility of this model and to explore the concept of QoL in MS carers in more detail.
    Citation
    Topcu G. et al (2016) 'Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research', Psychology & Health, 31 (6):693 .
    Publisher
    Taylor and Francis
    Journal
    Psychology & Health
    URI
    http://hdl.handle.net/10545/622885
    DOI
    10.1080/08870446.2016.1139112
    PubMed ID
    26742505
    Additional Links
    http://www.tandfonline.com/doi/full/10.1080/08870446.2016.1139112
    Type
    Article
    Language
    en
    ISSN
    0887-0446
    1476-8321
    ae974a485f413a2113503eed53cd6c53
    10.1080/08870446.2016.1139112
    Scopus Count
    Collections
    University of Derby Online (UDOL)

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