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    Reported school experiences of young people living with sickle cell disorder in England.

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    Authors
    Dyson, Simon M.
    Abuateya, Hala
    Atkin, Karl
    Culley, Lorraine
    Dyson, Sue E. cc
    Rowley, Dave
    Issue Date
    2010
    
    Metadata
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    Abstract
    A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government-defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not being allowed water in class; a third reported being made to take unsuitable exercise and being called lazy when tired. Children perceived both physical environment (temperature, school furniture) and social environment (being upset by teachers or other pupils) as triggers to episodes of their illness. Policy initiatives on school absences; preventive measures to ensure maintenance of good health; and measures to prevent perceived social attitudes precipitating ill health would also support children with other chronic illnesses at school.
    Journal
    British Educational Research Journal
    URI
    http://hdl.handle.net/10545/622798
    DOI
    10.1080/01411920902878941
    Additional Links
    http://eprints.mdx.ac.uk/12268/
    Type
    Article
    ISSN
    0141-9889
    ae974a485f413a2113503eed53cd6c53
    10.1080/01411920902878941
    Scopus Count
    Collections
    Health and Social Care Research Centre

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