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    We are not the same people we used to be: an exploration of family biographical narratives and identity change following traumatic brain injury

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    Authors
    Whiffin, Charlotte Jane cc
    Ellis-Hill, Caroline
    Bailey, Christopher
    Jarrett, Nicola
    Hutchinson, Peter J.
    Affiliation
    University of Derby
    Bournemouth University
    University of Nottingham
    University of Southampton
    University of Cambridge
    Issue Date
    2017-10-26
    
    Metadata
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    Abstract
    Subjective changes are increasingly recognised as important in recovery and rehabilitation following traumatic brain injury. Accumulation of subjective changes over time has led many to examine the question of ‘continuity of self’ post-injury. Vacillation between feeling the same and different is common and often at odds with the medical narrative preparing families for permanent change. This position of ambiguity was examined in a qualitative narrative study. The aim of this paper is to describe the narrative structures used by uninjured members of a family to understand change. These changes relate primarily, to their perspective of whether and how the injured person had changed, but also secondarily to whether and why they themselves felt they had changed in the first year post-injury. Nine uninjured family members from three families took part in three unstructured interviews during the first twelve months post-injury. In-depth narrative analysis showed family members used biographical attendance; biographical disruption; biographical continuity and biographical reconstruction to understand change. Drawing on these findings it is argued that concentrating on a narrative of change is too limiting and that engaging in biographical narratives may help humanise care provided to injured individuals and their families. Implications for research and practice are discussed
    Citation
    Whiffin, C. et al (2017) 'We are not the same people we used to be: an exploration of family biographical narratives and identity change following traumatic brain injury', Neuropsychological Rehabilitation, 29(8). DOI: 10.1080/09602011.2017.1387577
    Publisher
    Taylor and Francis
    Journal
    Neuropsychological Rehabilitation
    URI
    http://hdl.handle.net/10545/621878
    DOI
    10.1080/09602011.2017.1387577
    Additional Links
    https://doi.org/10.1080/09602011.2017.1387577
    Type
    Article
    Language
    en
    ISSN
    9602011
    ae974a485f413a2113503eed53cd6c53
    10.1080/09602011.2017.1387577
    Scopus Count
    Collections
    School of Nursing and Professional Practice

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