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dc.contributor.authorAubeeluck, Aimee
dc.contributor.authorDorey, Julie
dc.contributor.authorSquitieri, Ferdinando
dc.contributor.authorClay, Emilie
dc.contributor.authorStupple, Edward J. N.
dc.contributor.authorDe Nicola, Annunziata
dc.contributor.authorBuchanan, Heather
dc.contributor.authorMartino, Tiziana
dc.contributor.authorToumi, Mondher
dc.date.accessioned2016-07-06T12:36:06Z
dc.date.available2016-07-06T12:36:06Z
dc.date.issued2012-07-21
dc.identifier.citationFurther evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations 2012, 22 (5):1093 Quality of Life Researchen
dc.identifier.issn0962-9343
dc.identifier.issn1573-2649
dc.identifier.doi10.1007/s11136-012-0227-2
dc.identifier.urihttp://hdl.handle.net/10545/615640
dc.description.abstractBackground Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems, linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this research through the validation of French and Italian translations of the Huntington’s disease quality of life battery for carers (HDQoL-C). Method A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring the burden in HD across Europe and the USA. Results Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe symptoms. Discussion Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.
dc.language.isoenen
dc.relation.urlhttp://link.springer.com/10.1007/s11136-012-0227-2en
dc.rightsArchived with thanks to Quality of Life Researchen
dc.subjectQuality of lifeen
dc.subjectHuntington’s diseaseen
dc.subjectCaregiversen
dc.titleFurther evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translationsen
dc.typeArticleen
dc.contributor.departmentUniversity of Derbyen
dc.identifier.journalQuality of Life Researchen
html.description.abstractBackground Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems, linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this research through the validation of French and Italian translations of the Huntington’s disease quality of life battery for carers (HDQoL-C). Method A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring the burden in HD across Europe and the USA. Results Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe symptoms. Discussion Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.


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