• Dementia and stigma: a review of the literature on the reality of living with dementia.

      Kilduff, Alison; University of Derby (Unite, 2014-11)
      This paper provides a review of the literature on the reality of living with a diagnosis of dementia in terms of stigma and ageism, and their effects on care.
    • Evaluation of the Good Life Festival: a model for co-produced dementia events

      Luxmoore, Beth; Marrett, Claire; Calvert, Lesley; Calvert, Sam; Foy, Pat; Smith, Emma; Collier, Elizabeth; Salford University (RCNi, 2018-03-05)
      This article presents an evaluation of the Good Life Festival, an event co-produced by people living with dementia, Salford University Dementia Institute, Alzheimer’s Society Salford and Salford Adventures. Co-production was a new way of working and was important because people living with dementia said they would like an event organised ‘for people with dementia by people with dementia’. A dementia-friendly evaluation form was circulated at the event. Of the 80 people who attended, 35 completed the evaluation form, all of whom said they enjoyed the event. Of these, 32 (91%) had learned something new and 27 (77%) left feeling more positive about living with dementia. Event attendees and organisers also provided qualitative feedback. Recommendations based on what we learned from planning and running the event are provided, which include having a media strategy in place and to send a follow-up letter to remind people about the information about resources/services advertised on the day.
    • Experiences of integrated care for dementia from family and carer perspectives: A framework analysis of massive open online course discussion board posts

      Robertshaw, David; Cross, Ainslea; University of Derby (Sage, 2017-07-18)
      Background Integrated Care for dementia is an increasingly popular approach to supporting people with dementia, bringing services together to form a single cohesive provision for service users. This approach is still in its infancy but has the potential to improve the management of dementia, social care and to enhance the patient experience. Aims To understand views and experiences of integrated health and social care for dementia from the perspective of carers, families, healthcare professionals and researchers. Methods Crowdsourcing views and experiences from 'Bridging the Dementia Divide', a massive open online course at the University of Derby, provide a rich source of qualitative data from carers, families and healthcare professionals. We analysed 847 massive open online course discussion board posts using a Framework Analysis approach. Results Participants described how Integrated Care for dementia should be person-centred and holistic, involving a multidisciplinary team of health and social care practitioners, as well as the patient, the family and the wider community. The establishment of Integrated Care for dementia was viewed positively.
    • Roles and responsibilities in integrated care for dementia.

      Robertshaw, David; Cross, Ainslea; University of Derby; School of Nursing and Professional Practice, University of Derby, Derby, UK; UDOL, University of Derby, Derby, UK (Emerald, 2019-04-15)
      PURPOSE Effective integrated healthcare systems require capable, trained workforces with leadership, shared governance and co-ordination. This study aimed to provide additional understanding of roles and responsibilities in relation to integrated care from the perspective of massive open online course (MOOC) participants. METHODOLOGY MOOC discussion board posts were analysed using Framework analysis consisting of transcription, familiarisation, coding, developing an analytical framework and application of the framework. FINDINGS Boundaries and key issues surrounding roles and responsibilities were highlighted and participants suggested a number of enablers that could remove barriers, thereby enhancing integrated care. ORIGINALITY/VALUE Enablers included introduction of shared communication and IT systems to support continuity of care. Awareness and understanding of dementia was seen as crucial to promote person centred care and care planning. The roles of education in, and experience of, dementia care were highlighted. Barriers affecting the roles and responsibility professionals exercise include funding, role conflicts, time constraints and time-consuming paperwork.