Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations

Hdl Handle:
http://hdl.handle.net/10545/615640
Title:
Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations
Authors:
Aubeeluck, Aimee; Dorey, Julie; Squitieri, Ferdinando; Clay, Emilie; Stupple, Edward J. N. ( 0000-0001-8545-9504 ) ; De Nicola, Annunziata; Buchanan, Heather; Martino, Tiziana; Toumi, Mondher
Abstract:
Background Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems, linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this research through the validation of French and Italian translations of the Huntington’s disease quality of life battery for carers (HDQoL-C). Method A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring the burden in HD across Europe and the USA. Results Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe symptoms. Discussion Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.
Affiliation:
University of Derby
Citation:
Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations 2012, 22 (5):1093 Quality of Life Research
Journal:
Quality of Life Research
Issue Date:
21-Jul-2012
URI:
http://hdl.handle.net/10545/615640
DOI:
10.1007/s11136-012-0227-2
Additional Links:
http://link.springer.com/10.1007/s11136-012-0227-2
Type:
Article
Language:
en
ISSN:
0962-9343; 1573-2649
Appears in Collections:
Centre for Psychological Research

Full metadata record

DC FieldValue Language
dc.contributor.authorAubeeluck, Aimeeen
dc.contributor.authorDorey, Julieen
dc.contributor.authorSquitieri, Ferdinandoen
dc.contributor.authorClay, Emilieen
dc.contributor.authorStupple, Edward J. N.en
dc.contributor.authorDe Nicola, Annunziataen
dc.contributor.authorBuchanan, Heatheren
dc.contributor.authorMartino, Tizianaen
dc.contributor.authorToumi, Mondheren
dc.date.accessioned2016-07-06T12:36:06Z-
dc.date.available2016-07-06T12:36:06Z-
dc.date.issued2012-07-21-
dc.identifier.citationFurther evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations 2012, 22 (5):1093 Quality of Life Researchen
dc.identifier.issn0962-9343-
dc.identifier.issn1573-2649-
dc.identifier.doi10.1007/s11136-012-0227-2-
dc.identifier.urihttp://hdl.handle.net/10545/615640-
dc.description.abstractBackground Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems, linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this research through the validation of French and Italian translations of the Huntington’s disease quality of life battery for carers (HDQoL-C). Method A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring the burden in HD across Europe and the USA. Results Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe symptoms. Discussion Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.en
dc.language.isoenen
dc.relation.urlhttp://link.springer.com/10.1007/s11136-012-0227-2en
dc.rightsArchived with thanks to Quality of Life Researchen
dc.subjectQuality of lifeen
dc.subjectHuntington’s diseaseen
dc.subjectCaregiversen
dc.titleFurther evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translationsen
dc.typeArticleen
dc.contributor.departmentUniversity of Derbyen
dc.identifier.journalQuality of Life Researchen
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